Autism & the money hungry medical community

There’s an ugly side to therapies for Autism and Sensory Processing Disorder.

I’ve learned a few things along the way.

Not all therapists and doctors are wanting to truly help your loved one with a diagnosis.

Unfortunately a lot of therapists and therapy agencies see LARGE money symbols when they hear the words Autism or special needs.

With my child’s first diagnosis I was oblivious. Unaware of the money maker that Autism has become.

But as time went on I realized how much the therapists were overcharging. How many behaviors they wanted to “fix” how many sessions it could take to “fix” these behaviors.

I found myself stopping multiple therapies because of the money hungry therapists charging an ungodly amount for honestly some weird shit.

I personally like that my kids know how to line up shit with such precision that truly takes patience and hard work.

I don’t discourage healthy behaviors. They may hit the nail on the head for autism behaviors but they don’t harm and it doesn’t truly affect their days.

I became so discouraged with the medical community that we up and moved our family away. Finding equine therapy that was truly amazing for our kids.

But then again it was met with a money hungry therapist. Using my kids labels for her own financial betterment.

It became less about helping them and more about how much can I possibly charge you.

She wasn’t the first and she wasn’t the last therapist to take my kids labels and use them for personal financial comfort.

It’s hard to find therapists that truly want to work with your loved one with Autism.

It’s discouraging and it’s downright annoying.

I love what I’ve learned from both my kids. I’ve found out things about myself and my kids that I would never have understood had they not been labeled.

If you find yourself shelling out ungodly amounts of cash flow for therapy I encourage you to really look at what the therapist is working on with your kids. What are they charging you? Do you notice a difference. Is it really bettering your situation. And are your kids happy? And are there things that you can learn yourself and help your kids daily with?

I remember one specific session with my daughter where the therapist treated her with such disrespect and lack of compassion for any person that I immediately felt mama bear take hold. And had some words.

I always have hated the therapists that talk about your child’s struggles in front of them. Almost shaming them for something they cannot control.

Autism is a daily challenge for the kids and for me.

But it is definitely not something less. It isn’t something to be cured. It isn’t something to change.

For now we do not have our kids in therapy. Instead I use everything I’ve learned over the years and encourage them when they are struggling. Hold them during difficult times. And love them no matter what.

Therapy isn’t the end all be all for Autism.

Unfortunately the medical community has made it a massive money making scheme. Scaring parents into days of therapy.

But as a mom of two kids on the spectrum. I’m telling you. Therapy shouldn’t be about money. Therapy should be an aid for your child’s struggles.

If you find yourself unhappy with therapy or notice your child’s behaviors become worse with therapy.

Consider how it feels for them. Consider how financially it’s affecting you and benefiting the therapists.

I’m not saying autism doesn’t benefit from therapy. I’m saying in a world of personal gain therapists may not have the interests of your family in mind. They may be blinded by money symbols.

Beauty of Autism

There’s a side of Autism you don’t hear people talk about.

There is a profoundly beautiful aspect to Autism that I’m always amazed by.

My oldest poses the most soul provoking questions.

My youngest has a heart for people and animals that can bring tears to your eyes.

I’ve always said that Autism isn’t a disability. Disability doesn’t begin to describe the beautiful side to Autism.

Both my children are so in tune with their souls. Truly.

I’ve called my kids earth angels since I found out their “quirks” were on the Autism checklist.

Sometimes I wonder if Autism is the universes way of bringing a new change to this world.

I’ve never met one autistic person that doesn’t have a truly kind heart. And anyone would agree humanity is indeed in need of more soulful truly good people.

I hate that the medical community has put such an emphasis on the challenging side to autism.

So now parents are forever examining their young kids for the dreaded list of things to watch for.

Instead of seeing what a gift it can be.

Both my kids have their own gifts. (And struggles) but steer them in the direction of something they have interest in and they will shock you with their focus, their desire to learn.

Have you noticed most places you go to customer service sucks and most checkers are being replaced with machines. More and more people spend more time socializing on the web than they do with people daily. The need for socialization is changing. More and more children are being diagnosed with autism. But what if you looked into the future. There will be no need for much social interaction if things continue as they are.

Socialization is changing.

So whose to say those with autism aren’t just souls ahead of their time paving the way towards our future?

One day my autistic children will grow into autistic adults and gift this world with their unique abilities and kind souls.

The effects of anxiety on our bodies

No one likes to talk about poop or stomach issues.

But the reality is people poop. And some people have some struggles. Just saying.

Anxiety, stress, depression can wreak havoc on the body.

I’ll be completely transparent when I say raising two kids on the spectrum has caused me a lot of tummy issues.

Sleepless nights, meltdowns, repetitive noise behaviors seem to cripple my stomach.

Some days I feel as if I’m holding my breath all day. Not quite sure how to grasp a hold on the days challenges and moods.

This feeling of holding my breath and internally stifling the anxiety my body is under has destroyed my body internally.

I’m not blaming my kids for their behaviors. Or Autism for that matter.

But it is hard. Being a mama of kids on the spectrum. It’s a hard balance to reach. Sleepless nights don’t mean I get a break for the day. Out of control meltdowns add more anxiety. I do my very best to keep my own struggles to myself so not to reflect back on the kids.

But internally it has wreaked havoc on me.

I’ve spent multiple hours in the emergency room for unbearable stomach pain. A compliment of my own anxiety from the struggles I face raising two kids on the spectrum.

This isn’t a blame game. More of a confession of a mama that struggles daily with trying to be a good mama to her kids.

Moms make sacrifices. And I think moms with kids with challenges make more sacrifices.

Then there’s the fact that it’s hard to find support and people who truly understand the struggles because let’s be real each person with autism has their own unique struggles and strengths. So it’s hard to find someone who can relate to what you experience. Because of course everyone is different.

I’ve found myself struggling with my own health in all this autism business. And sometimes I realize my own struggles tend to have some spectrumy behaviors as well.

I read recently about a capsule with peppermint oil, and ginger can help ease the pain and discomfort associated with IBS.

So this week I’ve mixed up some potions in capsules and will try them for a few weeks before I can support or discredit this potion.

Praying it works. Praying I can learn to condition my own response to the days that can seem so out of control.

I truly hate anxiety. I hate that is has such a crippling effect on my body. And I hate that I haven’t been able to find a way to truly cope other than stifling my own struggles.

Do you find your anxiety leads to tummy issues? And how do you combat it?

A Simple Mom’s Guide to Essential Oils

I’ve written a lot for clients not much for myself.

I find it less work to write for someone else. I’m too much of a perfectionist sometimes and it ends up hindering my own production.

I decided on a whim to write and publish my own ebook.

It’s my first ebook from start to finish. I wanted it to seem as if you are talking to a friend. No sales just some advice. Some potions.

Some things that work for my family and own health.

It has a little of everything. Pretty common solutions to ailments. It’s easy to read, but should be used more as a guide depending on what potion and ailment you may have.

Of course I don’t think I’m a witch. But it is more fun to call them potions.

You can download for $2.99 my ebook guide for beginner oilers on Amazon.

A Simple Mom’s Guide to Essential Oils

I hope that you find some useful potions and recipes to try in your home for healthier living.

Danielle

The Sleep Potion

Today I wanted to talk about sleep.

And share our family sleep cure.

When I say that we struggled with sleep in our household, I mean my oldest son would wake anywhere from 5-15 times a night screaming.  Almost every night since we brought him home from the hospital.

I tried everything I could think of.  I spent my days and nights researching, praying, changing diets, weighted blankets you name it.  We tried it.  We tried different oils with no assistance.  Tired Teddies would help the kids fall asleep, but he would never stay asleep.  He was always restless and seemed uncomfortable even while sleeping.  I had doctors run tests, so many different things and nothing seemed to give.

We even saw a sleep specialist.

Anyways after doing some research on different essential oils I decided to mix up a whipped coconut potion.  That night I put it on the kids and they slept perfectly.  So MJE and I decided to try it on ourselves the next night, and we slept the best we had slept in years.  We are seriously amazed.  No one goes to bed without MamaD’s Sleep Potion.  What started as a joke has turned into something amazing.  For once we feel good.  We wake up feeling refreshed, pain free.  Thinking maybe it was all a placebo effect I sent some to friends to try and all said they slept the best they had ever slept.  I noticed EBE isn’t restless in his sleep anymore.  He’s actually sleeping and it’s been months he has been sleeping through the night.

The Sleep Potion contains all natural ingredients.  Whipped from my kitchen to your home.  I only tease I don’t think I’m a witch but we do call them potions in our home.  So the name seemed fitting because we often are shocked by an oils ability to heal.  Considering we’ve been told most of our lives to find a pill for this or that.  So potions seem silly, but I’ll tell you this potion has the sleep cure.

The sleep potion contains copaiba oil, also known as the “marijuana oil”, lavender, panaway, and cedarwood essential oils.

It truly has a healing ability.  It’s all natural ingredients make it safe for all ages to try.

This has been a Godsend in our household.

I’ll have The Sleep Potion up in the Etsy shop for sale on September 1st.  Made with all natural ingredients from one ex sleep deprived mama.

Why I choose Young Living Copaiba Oil

  • It is way more affordable than CBD
  • 100% drug-free with no risk of containing THC and 100% legal
  • Young Living extensively tests all products, including third-party testing. Young Living guarantees all oils are oils free of pesticides, heavy metals, and contaminants.
  • Not from the cannabis plant, so using Copaiba won’t affect a drug test

Everything is whipped and created in my kitchen.

From my home to yours.  Hope you find some sleep in your journey.

Danielle

 

 

Tantrum vs Meltdown

Today my mom asked me how I knew Heidi wasn’t just having a 4 year old tantrum.

Then I started thinking and thought I’d share in our house how we know the difference. I think actions are determined on how to handle each one differently so it’s important to understand there is in fact a difference.

A tantrum is simply a way for child to express their anger, sadness, frustration. It’s easily recovered from. And crying ceases when given the object of their desire.

You might see

Whining

Crying

Hitting

But it’s usually diminished after a few minutes.

A meltdown is a tantrum of epic proportions. It can go on for up to an hour.

It’s irrational.

There could be hitting.

Harming themselves.

Or completely shutting down and just sobbing.

A meltdown goes on for a while and leaves the child emotional and distraught for most the day.

I think it’s important to understand there is in fact a difference in both.

A tantrum may also lead to a meltdown if it’s one of those days.

The sensory systems of our children are heightened. They feel and see differently than a typical mind.

I’m not saying the response of a meltdown should be tolerated. I’m suggesting that there is a way to teach and grow alongside your children by understanding it a little more.

Just some thoughts from one Autism mama.

Homegrown french fries for picky eaters

Both my kids would be considered picky eaters.  And anytime you think you have it figured out that they like something they change it up on you.

But something they will both eat consistently is french fries.  With all the horrible stuff in the news about what is actually in some of our store bought food products I’m encouraged to grow more and eat healthier.

The kids dug 27 potatoes out of the garden.  They had a blast doing it.

And today we ate the fruit of our labor.  I’d say it was a good lesson in all and everything tasted so delicious!

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Hopefully this is something your picky eaters will like.

Homegrown french fries for picky eaters

  • 10 potatoes cut into whatever sort of shapes or wedges you’d like.
  • 1 Tbsp avocado oil
  • 2 teaspoons Nutritional Yeast
  • pepper to taste

Directions:

Mix all ingredients in a bowl.  Lay potatoes on lightly oiled (I use a little avocado oil or coconut oil) pan.

Bake for 25-30 minutes on 400.

I don’t get any complaints about these.

Hope you enjoy!

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