Autism & the money hungry medical community

There’s an ugly side to therapies for Autism and Sensory Processing Disorder.

I’ve learned a few things along the way.

Not all therapists and doctors are wanting to truly help your loved one with a diagnosis.

Unfortunately a lot of therapists and therapy agencies see LARGE money symbols when they hear the words Autism or special needs.

With my child’s first diagnosis I was oblivious. Unaware of the money maker that Autism has become.

But as time went on I realized how much the therapists were overcharging. How many behaviors they wanted to “fix” how many sessions it could take to “fix” these behaviors.

I found myself stopping multiple therapies because of the money hungry therapists charging an ungodly amount for honestly some weird shit.

I personally like that my kids know how to line up shit with such precision that truly takes patience and hard work.

I don’t discourage healthy behaviors. They may hit the nail on the head for autism behaviors but they don’t harm and it doesn’t truly affect their days.

I became so discouraged with the medical community that we up and moved our family away. Finding equine therapy that was truly amazing for our kids.

But then again it was met with a money hungry therapist. Using my kids labels for her own financial betterment.

It became less about helping them and more about how much can I possibly charge you.

She wasn’t the first and she wasn’t the last therapist to take my kids labels and use them for personal financial comfort.

It’s hard to find therapists that truly want to work with your loved one with Autism.

It’s discouraging and it’s downright annoying.

I love what I’ve learned from both my kids. I’ve found out things about myself and my kids that I would never have understood had they not been labeled.

If you find yourself shelling out ungodly amounts of cash flow for therapy I encourage you to really look at what the therapist is working on with your kids. What are they charging you? Do you notice a difference. Is it really bettering your situation. And are your kids happy? And are there things that you can learn yourself and help your kids daily with?

I remember one specific session with my daughter where the therapist treated her with such disrespect and lack of compassion for any person that I immediately felt mama bear take hold. And had some words.

I always have hated the therapists that talk about your child’s struggles in front of them. Almost shaming them for something they cannot control.

Autism is a daily challenge for the kids and for me.

But it is definitely not something less. It isn’t something to be cured. It isn’t something to change.

For now we do not have our kids in therapy. Instead I use everything I’ve learned over the years and encourage them when they are struggling. Hold them during difficult times. And love them no matter what.

Therapy isn’t the end all be all for Autism.

Unfortunately the medical community has made it a massive money making scheme. Scaring parents into days of therapy.

But as a mom of two kids on the spectrum. I’m telling you. Therapy shouldn’t be about money. Therapy should be an aid for your child’s struggles.

If you find yourself unhappy with therapy or notice your child’s behaviors become worse with therapy.

Consider how it feels for them. Consider how financially it’s affecting you and benefiting the therapists.

I’m not saying autism doesn’t benefit from therapy. I’m saying in a world of personal gain therapists may not have the interests of your family in mind. They may be blinded by money symbols.

Germ Zapping homemade playdough/Calming playdough

What if I told you that you could make playdough in less than 5 minutes in the comfort of your home.

Save yourself a little bit of money, encourage relaxation and focus with lavender playdough.

Keep the germs away with this easy to make germ zapping playdough.

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I often hear there isn’t enough time, and sure it may seem easier to just to pick up a thing of playdough to keep your kids entertained.  But it’s also unbelievably simple to create playdough that is safe for little hands.

Recipe from our home to yours.

Using Young Living Essential oils.

Germ Zapping Playdough

1 cup flour

1/2 cup salt

2 Tablespoons oil

3 tablespoons cream of tarter (3 tablespoons vinegar if you don’t have cream of tartar lying around)

1 cup water

5 drops Thieves Young Living Essential Oil

Food Dye is optional

Add all ingredients into a pot and cook on medium heat.  Stirring constantly until dough resembles playdough.

Store in airtight container for up to 2 months.  I do regularly add drops of Thieves.

This is perfect for when you’ve come home from a birthday party, or grocery store.  Of course I have the kids wash their hands first.  This is just a little secret from my home to yours.

Calming Playdough

1 cup water

1 cup flour

1/2 cup salt

2 Tablespoons oil

3 Tablespoons cream of tartar

5 drops lavender Young Living essential oil

Food dye is optional.  I usually choose a color that isn’t too overstimulating if I plan to use this as a calm down tool in our house.

Add all ingredients into a pot and cook on medium heat.  Stirring constantly until dough resembles playdough.

Store in airtight container for up to 2 months.  I do regularly add drops of Lavender.

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With two kids with sensory differences these two playdough recipes get a lot of use in our house.  I am a firm believer in essential oils abilities to heal.

I hope you enjoy!

Danielle

 

 

 

To my beautiful blue-eyed baby girl

As I was sifting through old blog posts I’ve written.  I came across this post from two years ago the night before my daughter received a hefty Autism diagnosis.  It brought me to tears.

I remember writing this.  I remember all the unknowns we faced as a family.

I remember feeling completely overwhelmed by all the assessment forms and endless doctors appointments we faced as a family.  And I remember this gut feeling that they were just wrong in the way they viewed Autism.  Special needs or not she was and still is my baby and I will encourage her to succeed in life no matter what hiccups we may face along the way.

But as I read through it.  I couldn’t help but be overwhelmed with gratitude for the journey that God has put us on.  All the growth I’ve made as a Mama.  All the growth my beautiful blue-eyed baby girl has made.

If you are facing an impending diagnosis, or maybe you’ve just received a diagnosis.  Or maybe it’s been a day full of Autism quirks and you are just overwhelmed.  Things will look up, everything will be okay.  Don’t let the Doctors convince you that your child is less.  They are not.  You’ve been given a different lens to view life.

I’ve always hated using the term special needs.  I feel like somehow that makes Autism seem like something negative, and I’ve always viewed my kids as earth angels.  Sent here to teach me and this world a different way to view the world.

It’s a blessing.

To my beautiful, blue-eyed, baby girl.

I loved you the moment I found out I was pregnant with you. You were the most beautiful surprise and you continue to amaze me and surprise me with each passing day.

Tomorrow is a big day for you baby girl, but remember, tomorrow does not define you baby girl.

God has a plan for you baby girl. And we’re in this together.

“Before I formed you in the womb I knew you, before you were born I set you apart.” Jeremiah 1:5

God has a special plan for you that only He can see right now.

I’m scared for tomorrow, I’m scared for the unknown, I’m scared to think that you may struggle in your life. But I know why he chose you baby girl, you are strong, and kind, and beautiful. I may think you are fearless at times, but you are brave. You are so brave. I know why he chose me too. Because as much as I find myself in tears lately sweet girl, I know that this uncomfortable feeling, this ache that takes over my entire being is because I’m growing. I’m growing right alongside you sweet girl. I’m growing into the mommy you need me to be.

These are growing pains. We are in this together. We will grow together.

I don’t think for a minute this is going to be easy. It’s going to be hard at times. It’s going to bring me to my knees sometimes. But it’s going to be beautiful. It’s going to be absolutely beautiful to watch you progress, to receive the care you need, to be the person God wants you to be.

I don’t know what tomorrow brings for you, for me as your mom, or for our family, but I do know that we love you to the moon and back. That whatever comes of your assessment tomorrow, or your hearing test in a few weeks you are exactly as God wants you to be.


Tomorrow will not define you. Tomorrow is a merely a compass to guide you into becoming the person God meant you to be.
I love you always.

Mama